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Privacy vs. the Public’s Right to Know
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R.I. Secretary of State

Chaplinsky: Defining Freedom of Expression
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Of Genetics and Privacy
-A. John Phaneuf and P. Michael Fanning

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ThePSCReportonline!
A Semi-Quarterly Journal for the Alumni of the University of Rhode Island Political Science Department. 

Faculty Editors:
Professor Alfred Killilea
Professor Nicolai Petro

Editor:
Michael D. Fox

Associate Editor:
Sherry Keneson-Hall

Supported by the generous
donations of the University of Rhode Island Political Science Alumni.



Of Genetics and Privacy
A. John Phaneuf
P. Michael Fanning
Two of our fine, talented and very bright undergraduate students


  Where is the “unexplored land” but in our own untried enterprises?
-Henry David Thoreau
As we enter the “Brave, brave new world” of this new millenium, opportunities appear endless, yet danger ever lurks behind the guise of promise. Technological advances have surpassed light speed and science fiction  movies have become the vision of change. Where once the voyages of the  star ship “Enterprise” were located only on the screens of our imagination, now they are the driving force of  today’s reality. Though not completely over science’s affair with outer space, the frontiers now delve ever increasingly into the intricacies of the human mind and body. This entrance into the human body, into the inner realm of thoughts and ideas, into the fabricated blue print of what formulates those thoughts and ideas, brings with it a Pandora’s box of surprises yet unseen. As our understanding and application of human kind’s genetic sequence  reaches exciting new levels, dragging cautiously behind is the privacy of the individual, an issue of paramount importance with implications both public and private. 

In 1997 Andrew Niccol introduced modern pop-culture to the dangers and implications of genetic manipulation through his film “Gattaca.” The players in Gattaca find themselves without a private identity,  enslaved by their biological make up. Theirs is a world where all information is public, including an individual’s predisposition to disease, intelligence level, and “projected societal benefit.” In the film the main character Vincent, a child born free of major genetic alterations, is not allowed the same opportunities as others deemed more genetically fit. For instance, when he applies for a job at the elite Gattaca Corporation, he is turned down for reasons quietly unarticulated. Ironically , the themes of this “science-fiction” movie presently have noe begun to permeate national headlines. 

The February 9th edition of The Providence Journal reports that “[i]n 1998, a federal appeals court found that a government laboratory in California, the Lawrence Berkeley National Laboratory, had for years conducted genetic tests on employees without their permission, and it said the practice might have violated the workers’ privacy rights.” In response to this blatant misuse of private information, President Clinton issued a statement prohibiting all federal agencies from using genetic information within the hiring and promoting process of federal employees. He did this  to encourage private sector compliance with  federal guidelines. 

It would appear that advances in genetic studies are already threatening individual privacy. While this information is argued to benefit the society at large, it comes  at a great cost to the individual. Perhaps this cost is not worth the rewards; perhaps it is not the right thing to do. It is imperative that we educate ourselves, as citizens, to both the benefits and the dangers of such “advances.”. On the one hand, to be entirely pessimistic that we will unknowingly destroy what is essentially our spirit is not the best course. On the other hand, to be entirely optmistic that we can overcome  our deficiencies as creatures of an imperfect world is likewise a perilous direction for society. We stand at a turning point in history, facing countless directions with much too  little knowledge about which direction to proceed. We must advance slowly, with extreme caution, for the stakes are high and our next move might prove to be one of the most important we take as a species. 

The singing words mocked him derisively. “How beauteous mankind is! O brave new world….”

-Aldous Huxley, Brave New World
The authors are a fine example of our talented undergraduate students. -ed


Comments? Please contact Professor Al Killilea at: hookshot@uri.edu


The PSC Report invites unsolicited submissions (really, we need the material!!) of essays, articles and editorial comments.  Submissions should be sent via e-mail to hookshot@uri.edu or via US Mail on 3 1/2" diskette or CD-ROM with hardcopy to: 
The PSC Report
Al Killilea, Faculty Editor
Political Science Department
University of Rhode Island
Washburn Hall
Kingston, RI 02881