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you select any of the links below, a new
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Caregiving
AARP
Care and Family
page - This page contains information and
links geared towards caregivers/ consumers
but health professionals may also find it
useful. Source: AARP
Alzheimer's
Association
- This is a link to the section of their
national Alzheimer's Association web
site.
Americans
for Better Care of the
Dying
- ABCD is a non-profit public charity
devoted to improving the care system for
those with serious illness and their
families. The site offers action guides,
summaries of issues, tools & guides
for patient assessment, care of the dying,
etc. source: ABCD
Center
to Improve Care of the
Dying
- This organization was founded by an
interdisciplinary team of individuals
dedicated to research, public advocacy,
and education to improve the care of the
dying and their families. source:
CICD
Completing
a Life
- Created at Michigan State University,
Completing a Life focuses on 3 main
end-of-life issues: taking charge, finding
comfort, and reaching closure. In order to
access the site beyond the home page, a
high speed Internet connection is
required. Hoever, there is information on
ordering a CD-Rom version. Source:
MSU
Dying
Well
- This web site provides resources for
individuals, families, and health
professionals dealing with "life-limiting
illness." Source: Dying Well
Family
Caregiver Alliance
- FCA is a California-based, non-profit
organization that provides information and
support to people who care for loved ones
at home. The site contains an information
clearinghouse with access to fact sheets,
newsletters, research studies and reading
lists, plus other resources. source:
FCA
Hospice
Net
- This non-profit, Internet based
organization provides information and
support to patients and families facing
life-threatening illnesses. Information is
divided into 4 sections: (1) Services -
hospice FAQs, how to find a local hospice,
etc., (2) Patients -pain management,
palliative care, etc., (3) Caregivers -
how to be a supportive caregiver, etc.,
and (4) Bereavement - a guide to grief,
healing after a loss, etc. Source: Hospice
Net.
National
Alliance for
Caregiving
- NAC is a joint-venture among the
American Socety on Aging (ASA), the
Department of Veterans Affairs, the
National Association of Area Agencies on
Aging, and GlaxoWellcome. The site
contains caregiving tips, links to
consumer, governmental, and professional
caregiving web sites, as well as
downloadable reports and informational
products related to caregiving research.
Source: NAC
National
Association of Geriatric Care
Managers
- NAGCM is an association of professional
practitioners dedicated to the
"development, advancement, and promotion
of humane and dignified social,
psychological, and health care for the
elderly and their families..." Source:
NAGCM. The site provides information on
the role of geriatric care managers, care
management resources, and a search feature
for locating a care manager.
Rhode
Island Partnership to Improve End-of-Life
Care
- Funded by a grant from the Robert Wood
Johnson Foundation and based at Brown
University, the Partnership is a
collaborative effort among Brown
University, RIGEC, the University of Rhode
Island College of Nursing, and Aging 2000.
Projects include educational programs for
certified nursing assistants, quality
improvement program in pain management in
nursing facilities, consumer workshops,
and a spirituality conference. Source: RI
Partnership
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