View Quadangles Print Version →


 

Read Class Notes Online →

 

Browse CLASSPICS

 

 

Past Issues →

 

 

 

subscribeOnline picture

 

 

Advertise with Us →

 

 

Bookmark and Share

 

 

subscribeOnline picture RSS feed

 

Creating a Community of Support

More than 3 million Americans have epilepsy

150,000 new cases are diagnosed in the U.S. each year

1 in 100 people will have a seizure in their lifetime

65 million people have epilepsy worldwide
—The Epilepsy Foundation

They’ve been profiled in Family Circle and honored as “Health Heroes” by WebMD. But for Richard ’83 and Debra Siravo ’85, it’s all about the work they began a decade ago to improve the quality of life for children and families touched by epilepsy.

The Siravos, of Wakefield, R.I. created the Matthew Siravo Foundation to honor their youngest son, Matty, who was diagnosed with epilepsy as an infant and lost his life after a prolonged seizure at age five. “We wanted to take something horrific and turn it into something positive,” Debbie says. To date, The Matty Fund has raised $1.5 million for workshops, support groups, a therapeutic horseback riding camp, school  epilepsy awareness programs, and epilepsy research.

Community is important to these active URI alumni, who have deep Rhode Island roots. URI students volunteer regularly at Matty’s Place, a local special needs playground. Freshmen in URI 101 classes learn basic seizure first aid. Last fall, College of Pharmacy students and faculty presented a medication workshop for families living with epilepsy. Inspired by Matty’s special joy for life, the Siravos have built a community of support where there was none, changing lives and offering hope to the children and families they understand so well.

—Nicki Toler

The Matty Fund – In celebration of ten years from the Matty Fund on Vimeo.

Comments are open, but there are no comments.

Leave a Comment

Most comments will be posted within 24 hours of submission.

Spam protection by WP Captcha-Free

Web Extras

Rhody Postcards: Natalie Urban ’69

New ClassPics Post: Sarah Gileau ’02 welcomes daughter Scarlet Jean

New ClassPics Post: Pamela Giron ’10 and Ryan Duffy ’10

Meet the Luca Family

Denard James Pinderhughes Jr.: A Remembrance

Call Me Maybe: Dance-Pop Goes Intergenerational

Feedback

To the Editor:

The President’s View

Cutting ribbons underscores the value of community

Features

New Play on Hoop Dreams

In Fashion

Start-up to Success

A Walking Tour of URI’s New Digs

Nursing Profs Deliver Big Baby News

News & Views

Springboard for Entrepreneurs

We’ve Changed the Way We Teach Business

URI Alumni Honored by RIPEC

World Class Soccer, meet Krista McCann

Can Muggles Play Quidditch?

Press Box

Elliott Honored by Capital One and CoSIDA

Athletics Academic Advisor to Chair USA Track & Field/Cross Country Council

Barrientos Selected to Train With Guatemalan National Team

Bailes Named to A-10 All-Rookie Team

Roy Earns Preseason All-American Honor

Closeups

Kimberly Kowal Arcand ’97

Harsh Singh Lohit, M.B.A. ’87

Back Page

Creating a Community of Support

Alumni Chapters →

Wrapups

Alumni of the Game Honorees

Upcoming Events

URI Annual Scholarship Golf Tournament

Come Back to Your Alma Mater

Partnerships

Partners in the Future

Alumni Career Services

For the Seasoned Professional—What’s Next?




QuadAngles © 2014 URI Alumni Association. All rights reserved. Produced by the Office of Publications and Creative Services for the URI Alumni Association, Alumni Center, 73 Upper College Rd., Kingston, RI 02881. Phone: 401-874-2242 | Contact Quadangles